Author Archives: Communications

“YOU CAN DO IT” – the ride for epilepsy launches a 300km bike ride starting in Orangeville and ending in Mississauga cycling all through South Central Ontario.

April 10, 2024

“YOU CAN DO IT” – the ride for epilepsy launches a 300km bike ride starting in Orangeville and ending in Mississauga cycling all through South Central Ontario.

For Immediate Release – April 10th, 2024

Epilepsy South Central Ontario, a leader in epilepsy counseling and support services for clients diagnosed with epilepsy is proud to announce the details of its highly anticipated “YOU CAN DO IT” – the ride for epilepsy, scheduled to take place on May 25th, 2024, starting in Orangeville and ending in Mississauga.

Marco Magalhaes, his son Daniel Magalhaes, and friend Chris Kairalla will be cycling the first 100km to support epilepsy awareness and funding.  Daniel and Chris will travel for the first 100 km with Marco, and then Marco will continue on his journey to complete the full 300km.  

“Receiving no sustainable government funding, ‘The ‘YOU CAN DO IT – ride for epilepsy’ brings together the community to learn, understand and support our fundraising initiatives,” says David Charchalis, CEO, of Epilepsy South Central Ontario.

CLICK HERE TO VIEW FUNDRAISING PAGE

For media inquiries, please contact:

Trevor Gordon

Community Engagement and Media Manager

trevor@epilepsysco.org

905-450-1900  ext. 206

 

ABOUT EPILEPSY SOUTH CENTRAL ONTARIO

 

Epilepsy South Central Ontario is a non-profit charitable organization that provides education, information, and support to families and individuals and enhance the quality of life for those living with seizure disorders. Established in 2008, Epilepsy South Central Ontario works to increase public awareness and encourages understanding within our vast and diverse community. Our vision is to eliminate barriers within the community and uphold a high standard of positive race relations (BIPOC) and outlook while striving to ensure Sunny Days Camp, the Youth Empowerment Program, Seniors Programs, Counselling and Support services are accessible to all.

 

The darkness this unknown brought scared both of my parents a lot

April 9, 2024

My brother was born on a hot day in August of 2005. When he was born, my grandad named him, and he was a healthy boy. Almost two years have passed, and I came to the world to meet with him. My parents were happy to have two healthy kids, not expecting anything unfortunate to happen. My brother did not have any health problems at the age of 2, or nothing my parents noticed. As time passed, his speaking went back and my parents assumed that he was copying me, his baby sister. But as I grew older, my brother’s speaking didn’t improve, and my parents were getting slightly concerned.

One day, a family friend pointed out that something might be “wrong” with my brother, offending both of my parents. They were not educated, and at the time it was an insult to suggest that someone’s kid might have neurological problems. My mom still tears up whenever she tells how they figured out that my brother was epileptic, and had one of the severe kinds. As suspicions came into my mom’s heart, she went to a neurologist and learned the truth. She didn’t know how to feel or what to do. She didn’t know what epilepsy was or how it would affect my brother. She didn’t know how my brother would not talk, use a diaper for years and struggle to fit in a society full of ruthless people.

The darkness this unknown brought scared both of my parents a lot. They spent years and years going to doctors as we all learned what to do when he had seizures. I remember how I would yell at kids who wouldn’t play with my brother because he was not able to speak, I would tell them how I understood him. He became my best friend, we couldn’t even sleep in different rooms.

As I am writing his story, I wish that I could tell that he is doing better now. He passed away at the age of 7, drowning in a pool because of a seizure he had. It was nighttime and we had just arrived at a hotel. As we were walking into the hotel, my brother ran away in a split second. We would always hold his hand, but he had a hyperactivity disorder and had a chance to leave us. We searched for him the whole night, praying for him to be okay. He drowned in a shallow pool, a pool he would never drown in if he didn’t have a seizure, leaving me behind.

Words are not enough to say how heartbroken I am, words are useless to explain my feelings as my tears fall to the ground. I am seventeen years old now, and the majority of my life was spent questioning the reason for people’s inconsideracy. For some reason, we see neurological disorders as something that must be hidden, as a form of flaw in one. I believe that it all has to do with the lack of knowledge we have about neurological disorders as a society, and how we love to make stories about what is going on in the darkness. I can’t go back in time, and educate people who wouldn’t play with my brother. I can’t go back in time to tell everyone how cruel they were. However, we all have the power to educate people today, we have the power to change the unacceptable titles people get because of having epilepsy.

Life is already hard for all of us, and it is meaningless to make it even harder for those who only want acceptance.

Stories like the one you see above highlight the crucialness of why donations are so important.

Your generous contribution will provide much-needed funding for research, education, awareness, advocacy, and client support, with the goal of increasing the quality of life for people of all ages who are living with epilepsy every day of their lives.

Please Donate.Make a Donation to Epilepsy South Central Ontario

For each pair of purple ribbon socks sold, $5 will be donated to Sunny Days Camp.

March 1, 2024
moJJa Socks is teaming up with Epilepsy South Central Ontario to raise funds through the sale of the Purple ribbon socks for Sunny Days Camp.
  • For each pair of purple ribbon socks sold, $5 will be donated to Sunny Days Camp.
  • Epilepsy South Central Ontario is a non-profit charitable organization that provides education, information, and support to families and individuals.  They are dedicated to improving the quality of life for persons living with epilepsy.
  • Epilepsy South Central Ontario’s Sunny Days Camp is a weekly day camp for children living with epilepsy and their siblings aged 5-14 years.
  • When other camps say no to children with epilepsy or seizure disorders, Epilepsy South Central Ontario says absolutely!

BUY NOW

More details

  • Purple ribbons are featured throughout the socks on a black background.
  • Reinforced heel and toe make these socks comfortable to wear.

BUY NOW

The 2024 Purple Gala “The Rhythm Of The Night”

January 31, 2024

The Purple Gala has been our signature fundraising event for the past 11 years.

​The live and silent auctions, great food, and great friends, all make for a great night!

Bringing back the 80’s Rhythm of the Night vibe with Neon Colour Fashion, Big Hair, Broad Shoulders, Narrow Bottoms, Madonna, Dirty Dancing, and more.

Learn about The Purple Gala and its history here: www.thepurplegala.ca 

It also made having friends harder since at the time I would be different and only be seen as “the girl with seizures”.

January 16, 2024

I first started having seizures when I was seven years old. Despite the fact, I was a very go-lucky and carefree kid without a care in the world. As a kid, I never thought of myself as different from being epileptic especially having gone to summer days camp run by epilepsy south-central Ontario where I interacted with kids who also had epilepsy.

When I started high school I was completely different from my younger self. I did begin to see myself as separate from everyone else since I was “limited” in what I could do like being on the sidelines sometimes in gym class or learning how to drive. During high school, my seizures were constantly changing It got to the point where I was so down on myself and the state of my epilepsy I was officially diagnosed with depression.

During that time it was very difficult for me I was stressed and frustrated, I have also been known to be very academic and not going to school because my seizures were so bad that I was “bedridden”. It was hard because I had wanted to go to college and get a good education in something I loved. It also made having friends harder since at the time I would be different and only be seen as “the girl with seizures”.

Fast forward to grade twelve, it was my last year of high school and it was time to apply to colleges and universities persuaded by my family and friends I did apply to some colleges with low expectations. Spring rolls around and acceptance letters are being sent out, I braced myself for not getting into any schools that I applied to instead I got a letter from humber college and was very surprised to see “congratulations!” in the first sentence I was shocked, to say the least, and by high school graduation, I had managed to graduate with honours.

Three years later I am proud to say I’ve turned my life around I graduated from Humber College with a diploma in media communications. and after years of uncertainty, I’ve been officially diagnosed with multi-focal epilepsy and I’m managing it well which also explains the changes I experienced with my epilepsy in high school. My mental health has improved since even if I still have bad days every once in a while.

I may not be the same carefree kid I used to be years ago but I’m the happy adult I hoped to become thanks to the support I get from family and friends and continue to grow and learn during my ongoing adventure and I’m determined to do so despite having epilepsy.

Stories like the one you see above highlight the crucialness of why donations are so important.

Your generous contribution will provide much-needed funding for research, education, awareness, advocacy, and client support, with the goal of increasing the quality of life for people of all ages who are living with epilepsy every day of their lives.

Please Donate.Make a Donation to Epilepsy South Central Ontario