Author Archives: Communications

Hamilton Man tasered by Police during Epileptic Seizure on October 2nd 2022

October 12, 2022

The Canadian Epilepsy Alliance (CEA) does not condone any type of physical restraint when dealing with a seizure.

Police Training for seizure management is available on their own Canadian Police Knowledge Network (CPKN) currently as an Elective Training Tool.

The CEA is asking for support and partners to make this training MANDATORY for all police in Canada. This 40-minute training session with videos will result in more education, and awareness and ultimately allow police to have the confidence to handle any seizure calmly and safely.

The CEA is a Canada-wide network of community organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness initiatives representing those living with epilepsy in Canada.

Mr. Charles is being offered support by Epilepsy South Central Ontario – the community epilepsy agency responsible for Hamilton.

To view the Police Training Outline: www.canadianepilepsyalliance.org

PLEASE SIGN The Marcus Charles Petition to make Police Epilepsy Training MANDATORY:

www.change.org/p/make-epilepsy-training-for-police-mandatory

NOTE: The Training is in English only. To help us translate this training to French, Please donate here

The Culinary Showdown

September 6, 2022

This November, Epilepsy South Central Ontario will be hosting its third Culinary Showdown.

The Culinary Showdown includes an all-star lineup of 5 celebrity chefs who will join our top 50 fundraising foodies to compete for the coveted Culinary Showdown Trophy.

This extraordinary challenge gives culinary enthusiasts the opportunity to fundraise in support of epilepsy to earn their spot to cook alongside celebrity chefs in a MasterChef-style competition as seen on TV!

​NOVEMBER 26th 2022

Delta Toronto Airport Hotel & Conference Centre

Learn all about it by visiting The Culinary Showdown’s official website.

WE NEED YOUR FEEDBACK ON THE POTENTIAL DEVELOPMENT OF A “CEA APP”

July 29, 2022

We invite you to share your expectations and opinions regarding the potential development of a Canadian Epilepsy Alliance mobile app.

We are asking the epilepsy community (epilepsy agencies, epilepsy partners, people living with epilepsy, and families of people with epilepsy) to have a say in developing a potential CEA app.

We are hoping to develop an app that will be relevant to someone living with epilepsy or someone part of the epilepsy community. The survey will help us an gain understanding of how you/they might use an app to help increase the quality of life, manage epilepsy, and stay up to date on the latest news and resources.

Responses to this survey will be collected and shared with our cea app committee in order to center future developments in this field around the needs and preferences of people living with epilepsy and the community at large

Doing this survey will give you the opportunity to be part of the growth of support services in Canada and help support your epilepsy community.

PLEASE COMPLETE THIS SHORT QUESTIONNAIRE HERE

(If you click on the language on the top right hand corner, it will change it to french)

This survey is open from July 28, 2022, to August 31, 2022 – share your feedback today!

TELUS Friendly Future Foundation Donates $20,000.00 to Epilepsy South Central Ontario for a Children and Youth Summer Empowerment Experience

June 29, 2022

Funding will help empower children and youth with epilepsy who feel isolated and face depression and anxiety. With about 60 participants, over 200 people will be positively impacted by the program

Mississauga, Ontario, June 29, 2022  – TELUS Friendly Future Foundation® has donated $20,000.00 to contribute towards Epilepsy South Central Ontario’s Children and Youth Summer Empowerment Experience which is dedicated to support children and youth with epilepsy through summer camp experiences and leadership opportunities they may otherwise be denied.

“We are addressing children and youth with epilepsy who often face depression and anxiety, living an isolated life preventing them from achieving their full potential, often unemployed or underemployed, relying on disability and other assistance. By providing them with confidence building programs and activities, we aim to improve their overall success in life” says Cynthia Milburn, CEO of the Charity

This amount will contribute to, which will allow Epilepsy South Central Ontario to impact at least 200 people throughout the length of the program and beyond. 

“We’ve heard from our charity partners about the challenges children and youth with epilepsy face every day,” says Shanan Spencer-Brown, Executive Director of TELUS Friendly Future Foundation. “We are honoured to be able to support Epilepsy South Central Ontario with a donation of $20,000 from the TELUS Greater Toronto Area Community Board. We are so appreciative of the work Epilepsy South Central Ontario is doing to help empower children and youth with epilepsy in their community.”

For more information on Epilepsy South Central Ontario and the $20,000.00 donation, please visit www.epilepsysco.org , and for more information on TELUS Friendly Future Foundation visit    friendlyfuture.com.

Epilepsy South Central Ontario is a non-profit charitable organization that provides education, information, and support to families and individuals and enhances the quality of life for those living with seizure disorders. Established in 2008, Epilepsy South Central Ontario works to increase public awareness and encourages understanding within our vast and diverse community. Our vision is to eliminate barriers within the community and uphold a high standard of positive race relations (BIPOC) and outlook while striving to ensure Sunny Days Camp, the Youth Empowerment Program, Seniors Programs, Counseling and Support services are accessible to all.

For additional information please visit www.epilepsysco.org

About TELUS Friendly Future Foundation

Founded in 2018, TELUS Friendly Future Foundation is an independent registered charity. Our mission is to help connect youth to a world of opportunities by supporting Canadian organizations that offer health, education or technology programs. We have provided more than $24 million in grants to community-based, provincial, territorial and national charities that help at-risk youth thrive in a digital world. TELUS Friendly Future Foundation alongside our 13 TELUS Community Boards, provides millions of dollars to more than 500 charities across Canada every year.

$491,700 OTF Grant Gives Epilepsy South Central Ontario for Clinic-to-Community Program

June 20, 2022

Mississauga Ontario – In 2020, at the beginning of the pandemic, Epilepsy South Central Ontario (ESCO) received $491,700, a three year GROW Grant from the Ontario Trillium Foundation to deliver the proven program Clinic to Community which will provide newly diagnosed families with the essential information and community support

“This investment by the Ontario Trillium Foundation has strengthened ESCO’s ability to provide families within the epilepsy community the support they need. By implementing additional educational resources and minimizing unnecessary emergency room visits, ESCO can continue to have a positive impact on people living with epilepsy all while reducing the burden of care for both our healthcare institutions and frontline workers,” said Rudy Cuzzetto, MPP for Mississauga Lakeshore.

“The impact of this Ontario Trillium Foundation grant has helped us to keep up with the financial objectives of ESCO as we are able to support families” said Cynthia Milburn, CEO of Epilepsy South Central Ontario. “In addition, this grant will allow us to build capacity through all the various ways of communicating with the epilepsy community and being available to them as demand has increased”

The Ontario Trillium Foundation (OTF) is an agency of the Government of Ontario, and one of Canada’s leading granting foundations. Last year, nearly $112M was invested into 1,384 community projects and partnerships to build healthy and vibrant communities and strengthen the impact of Ontario’s non-profit sector. In 2020/21, OTF supported Ontario’s economic recovery by helping non-profit organizations rebuild and recover from the impacts of COVID-19. Visit otf.ca to learn more.

 

Organization Contact for Media Inquiries:

Trevor Gordon, Media & Government Relations

Epilepsy South Central Ontario

905 450 1900 x 206

trevor@epilepsysco.org